![]() ![]() Reference: Access aggregated data from Orphanet at Orphadata.This includes names, synonyms, genes, symptom frequency, population estimates and more. ![]() Additionally, you can use to search for clinical studies by disease, terms, or location.ĭata collected from Orphanet and Online Mendelian Inheritance in Man (OMIM) are used to interpret and provide information on rare diseases. To find the right clinical study we recommend you consult your doctors, other trusted medical professionals, and patient organizations. Healthy volunteers may participate to help others and to contribute to moving science forward. People with a disease may participate to receive the newest possible treatment and additional care from clinical study staff as well as to help others living with the same or similar disease. People participate in clinical trials for many reasons. Additionally, you can use to search for clinical studies by disease, terms, or location. Request an update or to have your organization added to GARD. View GARD's criteria for including patient organizations, which can be found under the FAQs on our About page. Please contact an organization directly if you have questions about the information or resources it provides. Please note: GARD provides organizations for informational purposes only and not as an endorsement of their services.
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